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				<titl>Metadata record for Positive Connections: Connecting HIV-Infected Patients to Care, 2004-2006 [United States]</titl>
			</titlStmt>
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				<producer abbr="ICPSR">
					<ExtLink URI="http://www.icpsr.umich.edu/images/icpsr-logo.gif" title="ICPSR Logo" role="image" /> 
					Inter-university Consortium for Political and Social Research
					<ExtLink URI="http://www.icpsr.umich.edu/ICPSR/" title="URL of ICPSR Web Site" />
				</producer>
				<copyright>
					ICPSR metadata records are licensed under a Creative Commons Attribution-Noncommercial 3.0 United States License <ExtLink URI="http://creativecommons.org/licenses/by-nc/3.0/us/" title="Link to full text of license" />.
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			<verStmt>
				
				<version date="2013-05-21">2013-05-21</version>
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       <citation>
           <titlStmt>
             <titl>Positive Connections: Connecting HIV-Infected Patients to Care, 2004-2006 [United States]</titl>
 				
             <IDNo agency="ICPSR">22482</IDNo>
             <IDNo agency="CrossRef">10.3886/ICPSR22482.v1</IDNo>
           </titlStmt>
           <rspStmt>
    	
			<AuthEnty affiliation="Virginia Commonwealth University, and Fenway Community Health">Bradford, Judith</AuthEnty>
    	
           </rspStmt>
           <prodStmt>
				
    				
    					<fundAg>United States Department of Health and Human Services. Health Resources and Services Administration. HIV/AIDS Bureau</fundAg>
    				
				

    	
    		<grantNo agency="United States Department of Health and Human Services. Health Resources and Services Administration. HIV/AIDS Bureau">H97HA00191-05-07</grantNo>
    	

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             <distrbtr abbr="ICPSR" affiliation="Institute for Social Research, University of Michigan" URI="http://www.icpsr.umich.edu/ICPSR/">
               <ExtLink URI="http://www.icpsr.umich.edu/images/icpsr-logo.gif" title="Logo" />
               Inter-university Consortium for Political and Social Research
               <ExtLink URI="http://www.icpsr.umich.edu/ICPSR/" title="URL" />
             </distrbtr>
             <distDate date="2010-06-09">2010-06-09</distDate>
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           <biblCit>Bradford, Judith. Positive Connections: Connecting HIV-Infected Patients to Care, 2004-2006 [United States]. ICPSR22482-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2010-06-16. doi:10.3886/ICPSR22482.v1</biblCit>

				<holdings URI="http://dx.doi.org/10.3886/ICPSR22482.v1"></holdings>


        </citation>
      <stdyInfo>
           <subject>
		
      		<keyword vocab="thesaurus">AIDS</keyword>
      	
      		<keyword vocab="thesaurus">ambulatory care</keyword>
      	
      		<keyword vocab="thesaurus">bisexuality</keyword>
      	
      		<keyword vocab="thesaurus">communicable diseases</keyword>
      	
      		<keyword vocab="thesaurus">diseases</keyword>
      	
      		<keyword vocab="thesaurus">doctor visits</keyword>
      	
      		<keyword vocab="thesaurus">gay community</keyword>
      	
      		<keyword vocab="thesaurus">gays and lesbians</keyword>
      	
      		<keyword vocab="thesaurus">health attitudes</keyword>
      	
      		<keyword vocab="thesaurus">health care</keyword>
      	
      		<keyword vocab="thesaurus">health care access</keyword>
      	
      		<keyword vocab="thesaurus">health care delivery</keyword>
      	
      		<keyword vocab="thesaurus">health care services</keyword>
      	
      		<keyword vocab="thesaurus">health services utilization</keyword>
      	
      		<keyword vocab="thesaurus">health status</keyword>
      	
      		<keyword vocab="thesaurus">HIV</keyword>
      	
      		<keyword vocab="thesaurus">homosexuality</keyword>
      	
      		<keyword vocab="thesaurus">illness</keyword>
      	
      		<keyword vocab="thesaurus">medical care</keyword>
      	
      		<keyword vocab="thesaurus">medical evaluation</keyword>
      	
      		<keyword vocab="thesaurus">mental health services</keyword>
      	
      		<keyword vocab="thesaurus">patient care</keyword>
      	
      		<keyword vocab="thesaurus">physician availibilty</keyword>
      	
      		<keyword vocab="thesaurus">physician choice</keyword>
      	
      		<keyword vocab="thesaurus">physician patient relationship</keyword>
      	
      		<keyword vocab="thesaurus">primary care</keyword>
      	
      		<keyword vocab="thesaurus">treatment compliance</keyword>
      	
		
      		<topcClas source="archive" vocab="FENWAY subject classifications">FENWAY.III</topcClas>
      	
      		<topcClas source="archive" vocab="NAHDAP subject classifications">NAHDAP.I</topcClas>
      	
      		<topcClas source="archive" vocab="FENWAY subject classifications">FENWAY.I</topcClas>
      	
      		<topcClas source="archive" vocab="ICPSR subject classifications">ICPSR.XVI</topcClas>
      	
      		<topcClas source="archive" vocab="FENWAY subject classifications">FENWAY.VI</topcClas>
      	
      		<topcClas source="archive" vocab="ICPSR subject classifications">ICPSR.XVI.A</topcClas>
      	
           </subject>
          <abstract>The research study Positive Connections tested the Health Systems Navigation (HSN) model, an intervention linking near-peer interventionists with underserved HIV-infected individuals to assist them to become engaged and retained in HIV medical
care through supportive services and facilitated referrals. Working with a core group of local AIDS service organizations to identify unstable and out-of-care HIV-positive individuals, the HSN will enroll and provide health system navigation to participants. The principal goal was to enhance the probability that individuals from historically underserved populations would become engaged and retained in high quality, culturally competent HIV care. The theoretical basis for this intervention included individual behavior change models, social and community networks, and provider cultural competence. This project also sought to improve the understanding and the measurement of health care access problems by seeking to determine which problems have indicators and which do not, and to identify steps that can be taken to develop a reliable access monitoring system. The concept of Health Systems Navigator has been developed by the Multicultural AIDS Coalition.</abstract>
 			
           <abstract>Positive Connections tested the Health Systems Navigation (HSN) model, an intervention linking near-peer
interventionists with underserved HIV-infected individuals to assist them to become engaged and retained in HIV medical care through supportive services and facilitated referrals.</abstract>
           
 			
           <abstract>Participants were referred and recruited into the study through community based organizations that provide services to people living with HIV.  The study was primarily interested in HIV-infected people who were unstable and out-of-care.</abstract>
           
 			
          <abstract>Variables collected include information on the services related to the care of HIV-infected participants, specifically the types, location, duration, and frequency of services. Additional variables include specific information on the barriers to receiving and staying in care, such as participants' relationship with care providers, stigma, recent drug use, and mental health.</abstract>
          
           <sumDscr>
           
		
		
				
      		<timePrd event="start" date="2004" cycle="P1">2004</timePrd>
      		<timePrd event="end" date="2006" cycle="P1">2006</timePrd>
			
			
      		
      		
      	
		
 		
				
      		<collDate event="start" date="2004" cycle="P1">2004</collDate>
      		<collDate event="end" date="2006" cycle="P1">2006</collDate>
			
			
      		
      	
    	
    		<geogCover>New England</geogCover>
    	
    		<geogCover>United States</geogCover>
    	
    	
    	
    		<anlyUnit>individual</anlyUnit>
    	
	    	
	    		<universe>HIV-infected persons 18 years old and older in New England.</universe>
	    	
	    	
	    		<dataKind>survey data</dataKind>
	    	
           </sumDscr>
       </stdyInfo>
       <method>
           <dataColl>

             <sampProc>Local HIV/AIDS service organizations identified unstable and out-of-care HIV-positive individuals.</sampProc>
            

             <collMode>

    	

record abstracts














, 

    	


face-to-face interview













, 

    	









mail questionnaire






, 

    	













on-site questionnaire


, 

    	














telephone interview



    	

</collMode>



             <sources>
             
    		<dataSrc>agency-sponsored surveys</dataSrc>
    	
    		<dataSrc>clinical records</dataSrc>
    	
             </sources>
             
    	

		<cleanOps><p>ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of 
	disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major 
	statistical software formats as well as standard codebooks to accompany the data. In addition to 
	these procedures, ICPSR performed the following processing steps for this data collection:</p><list type="bulleted">
	<itm>Performed consistency checks.</itm><itm>Created variable labels and/or value labels.</itm><itm>Standardized missing values.</itm><itm>Checked for undocumented or out-of-range codes.</itm>
	</list>
	</cleanOps>
	
           </dataColl>


          <anlyInfo>


               <dataAppr>Several Likert-type scales were used</dataAppr>
              
          </anlyInfo>
       </method>
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           <setAvail media="online">
			
			
             <accsPlac URI="http://dx.doi.org/10.3886/ICPSR22482.v1">Ann Arbor, Mi.: Inter-university Consortium for Political and Social Research</accsPlac>
			
            </setAvail>
           <useStmt>
                <specPerm>Additional special permissions, where applicable, are described in the restrictions
                field.</specPerm>
                
 <conditions>
 	





<p>Please read the terms of use below. If you agree to them, click on the "I Agree" button to proceed. If you do not agree, you can click on the "I Do Not Agree" button to return to the home page.</p> <p>ICPSR adheres to the principles of the Data Seal of Approval <ExtLink URI="http://www.datasealofapproval.org/"/>, which, in part, require the data consumer to comply with access regulations imposed both by law and by the data repository, and to conform to codes of conduct that are generally accepted in higher education and scientific research for the exchange of knowledge and information. </p> <p>These data are distributed under the following terms of use, which are governed by ICPSR. By continuing past this point to the data retrieval process, you signify your agreement to comply with the requirements stated below:</p> <head n="2">Privacy of RESEARCH SUBJECTS</head> <p>Any intentional identification of a RESEARCH SUBJECT (whether an individual or an organization) or unauthorized disclosure of his or her confidential information violates the PROMISE OF CONFIDENTIALITY given to the providers of the information. Therefore, users of data agree:</p> <list type="bulleted"> <itm><p>To use these datasets solely for research or statistical purposes and not for investigation of specific RESEARCH SUBJECTS, except when identification is authorized in writing by ICPSR (netmail@icpsr.umich.edu <ExtLink URI="mailto:netmail@icpsr.umich.edu"/> )</p></itm> <itm><p>To make no use of the identity of any RESEARCH SUBJECT discovered inadvertently, and to advise ICPSR of any such discovery (netmail@icpsr.umich.edu <ExtLink URI="mailto:netmail@icpsr.umich.edu"/> )</p></itm> </list> <head n="2">Redistribution of Data</head> <p>You agree not to redistribute data or other materials without the written agreement of ICPSR, unless: </p> <list type="ordered"> <itm><p>You serve as the OFFICIAL or DESIGNATED REPRESENTATIVE at an ICPSR MEMBER INSTITUTION and are assisting AUTHORIZED USERS with obtaining data, or</p></itm> <itm><p>You are collaborating with other AUTHORIZED USERS to analyze the data for research or instructional purposes.</p></itm> </list> <p>When sharing data or other materials in these approved ways, you must include all accompanying files with the data, including terms of use. More information on  permission to redistribute data <ExtLink URI="http://www.icpsr.umich.edu/icpsrweb/content/datamanagement/policies/redistribute.html"/> can be found on the ICPSR Web site.</p> <head n="2">Citing Data</head> <p>You agree to reference the recommended bibliographic citation in any publication that employs resources provided by ICPSR. Authors of publications based on ICPSR data are required to send citations of their published works to ICPSR for inclusion in a database of related publications (bibliography@icpsr.umich.edu <ExtLink URI="mailto:bibliography@icpsr.umich.edu"/>) .</p> <head n="2">Disclaimer</head> <p>You acknowledge that the original collector of the data, ICPSR, and the relevant funding agency bear no responsibility for use of the data or for interpretations or inferences based upon such uses.</p> <head n="2">Violations</head> <p>If ICPSR determines that the terms of this agreement have been violated, ICPSR will act according to our policy on terms of use violations <ExtLink URI="http://www.icpsr.umich.edu/ICPSR/support/faqs/2008/10/what-are-consequences-of-violating"/>. Sanctions can include:</p> <list type="bulleted"> <itm><p>ICPSR may revoke the existing agreement, demand the return of the data in question, and deny all future access to ICPSR data.</p></itm> <itm><p>The violation may be reported to the Research Integrity Officer, Institutional Review Board, or Human Subjects Review Committee of the user's institution. A range of sanctions are available to institutions including revocation of tenure and termination.</p></itm> <itm><p>If the confidentiality of human subjects has been violated, the case may be reported to the Federal Office for Human Research Protections. This may result in an investigation of the user's institution, which can result in institution-wide sanctions including the suspension of all research grants. </p></itm> <itm><p>A court may award the payment of damages to any individual(s)/organization(s) harmed by the breach of the agreement.</p></itm> </list> <head n="2">Definitions</head> <list type="bulleted"><itm><hi>authorized user</hi> - A faculty member, staff member, or student at a member institution</itm><itm><hi>ICPSR</hi> - Inter-university Consortium for Political and Social Research</itm><itm><hi>member institution</hi> - An institutional member of ICPSR</itm><itm><hi>Official/Designated Representative</hi> - An individual appointed to represent a university's interests in ICPSR. This individual is also charged with providing user support to campus users. </itm><itm><hi>promise of confidentiality</hi> - A promise to a respondent or research participant that the information the respondent provides will not be disseminated without the permission of the respondent; that the fact that the respondent participated in the study will not be disclosed; and that disseminated information will include no linkages to the identity of the respondent. Such a promise encompasses traditional notions of both confidentiality and anonymity. Names and other identifying information regarding respondents, proxies, or other persons on whom the respondent or proxy provides information, are presumed to be confidential.</itm><itm><hi>research subject</hi> - A person or organization observed for purposes of research. Also called a respondent. A respondent is generally a survey respondent or informant, experimental or observational subject, focus group participant, or any other person providing information to a study or on whose behalf a proxy provides information. </itm></list>




 
 
 			
                
					<p>AVAILABLE.  This study is freely available to the general public.</p>
                
                  
                
                
                </conditions>
                <disclaimer>The original collector of the data, ICPSR, and the relevant funding agency bear no 
                responsibility for use of the data or for interpretations or inferences based upon such uses.
                </disclaimer>
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