Project HealthDesign: Estrellita - An Application for Tracking Observations of Daily Living Related to Preterm Infants, 2011-2012 (ICPSR 36029)

Principal Investigator(s): Flatley Brennan, Patricia, University of Wisconsin-Madison; Hayes, Gillian R., University of California-Irvine; Cheng-Ramos, Karen G., University of California-Irvine

Summary:

More than 12 percent of all United States births each year are preterm. To improve the care of these infants, which have an increased risk of serious developmental and chronic health problems, the Estrellita team created a mobile phone application to monitor premature infants and their caregivers. This app allows caregivers to better understand the infant care process and to more easily interact with clinicians about themselves and the care of their infants. Caregivers used the Estrellita app to record their own stress levels and mood and their infants' observations of daily living (ODL) such as baby fussiness, diapering, weight, and bonding activities with the babies. In addition, the app allowed the caregivers to track clinical appointments, review the ODL data, and send and receive text messages from clinicians.

Series: Project HealthDesign Series

Access Notes

  • One or more files in this data collection have special restrictions ; consult the restrictions note to learn more. You can apply online for access to the restricted-use data. A login is required to apply.

    The data are restricted from general dissemination for reasons of confidentiality. Users interested in obtaining the data must complete an Agreement for the Use of Confidential Data, specify the reasons for the request, and obtain IRB approval or notice of exemption for their research. Apply for access to the data through the ICPSR restricted data contract portal which can be accessed via the study home page.

    Any public-use data files in this collection are available for access by the general public. Access does not require affiliation with an ICPSR member institution.

Dataset(s)

DS0:  Study-Level Files
Documentation:
DS1:  Appointments Data - Download All Files (4.416 MB)
Documentation:
Download:

ASCII + SPSS Setup   
DS2:  Diapers Data - Download All Files (5.397 MB)
Documentation:
Download:

ASCII + SPSS Setup   
DS3:  Weight Data - Download All Files (4.388 MB)
Documentation:
Download:

ASCII + SPSS Setup   
DS4:  Survey Responses Data - Download All Files (7.294 MB)
Documentation:
Download:

ASCII + SPSS Setup   
DS5:  General Indicators Data - Download All Files (4.379 MB)
Documentation:
Download:

ASCII + SPSS Setup   
DS6:  Logs Data - Download All Files (51.789 MB)
Documentation:
Download:

ASCII + SPSS Setup   
DS7:  Posts Data - Download All Files (7.112 MB)
Documentation:
Download:

ASCII + SPSS Setup   

Study Description

Citation

Flatley Brennan, Patricia, Gillian R. Hayes, and Karen G. Cheng-Ramos. Project HealthDesign: Estrellita - An Application for Tracking Observations of Daily Living Related to Preterm Infants, 2011-2012. ICPSR36029-v1. Ann Arbor, MI: Inter-university Consortium for Political and Social Research [distributor], 2015-06-29. https://doi.org/10.3886/ICPSR36029.v1

Persistent URL: https://doi.org/10.3886/ICPSR36029.v1

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Funding

This study was funded by:

  • Robert Wood Johnson Foundation (67163)
  • National Science Foundation (IIS-1343969)

Scope of Study

Subject Terms:    health care, health information technology, observations of daily living, postpartum depression, premature births, stress

Geographic Coverage:    Orange County, California

Time Period:   

  • 2011--2012

Universe:    Premature infants and their caregivers.

Data Type(s):    clinical data, images: photographs, drawings, graphical representations, text, observational data, survey data

Data Collection Notes:

Estrellita (formerly FitBaby) was a project of Project HealthDesign, a national program of the Robert Wood Johnson Foundation designed to stimulate innovation in the development of person health records systems. Additional information about Estrellita is available on the Project HealthDesign Web site.

Additional support for data cleaning and depositing the data with ICPSR came from the Smart Asthma Management program funded by the National Science Foundation.

Methodology

Sample:    A convenience sample of eight infants and their caregivers was selected from neonatal intensive care units in the Orange County, California area.

Presence of Common Scales:   

Edinburgh Postnatal Depression Scale (EPDS)

Fussy-o-meter

MoodMap

Perceived Stress Scale

Extent of Processing:   ICPSR data undergo a confidentiality review and are altered when necessary to limit the risk of disclosure. ICPSR also routinely creates ready-to-go data files along with setups in the major statistical software formats as well as standard codebooks to accompany the data. In addition to these procedures, ICPSR performed the following processing steps for this data collection:

  • Created variable labels and/or value labels.
  • Checked for undocumented or out-of-range codes.

Version(s)

Original ICPSR Release:   2015-06-29

Utilities

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